Ways to Support
Join Us in Advancing a Breakthrough for MSMDS
Researchers are working to develop innovative therapies, including gene-based treatments that target the root cause of MSMDS.
With more funding, we can accelerate this work, bringing potential treatments closer to the children and families who urgently need them.
Make an Impact Today
Your donation will help fund critical research to:
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Prevent strokes
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Stabilise life-threatening complications
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Give children with MSMDS a brighter future
Together, we can turn hope into reality.
Fundraiser Ideas
Whether you’re planning something big or small, serious or a little bit silly like running a race dressed as a sausage, we would love to hear about it! Every idea, event, and challenge helps make a real difference, and we would be incredibly proud to support you along the way.
From bake sales and sponsored runs to community events and personal challenges, your creativity can help raise vital funds and awareness for ACTA2.
Get in touch using the link below and we will send you a fundraising pack filled with everything you need to get started, including helpful tips, resources, and guidance to make your event a success.
Together, we can achieve something truly meaningful.
Become a Sponsor or Charity Partner
For a charity like ours, sponsorship is more than support, it’s partnership. It helps fund vital research, grow awareness, and strengthen a community that so many families rely on.
As a sponsor, your support is recognised and shared, you’ll be featured on our website, invited to special events and fundraising evenings, and become part of a network driving real change. Together, we can make the invisible visible and move closer to a better future for those affected.
Join our community and follow our journey
Raising awareness of Lily’s condition is the first step toward building a strong, connected community and supporting the research that could change lives. Every action, no matter how small, helps bring visibility to those living with the condition, and to those still searching for a diagnosis.
Through platforms like Facebook, Instagram and TikTok, we share real stories and clear, meaningful insights to help more people understand MSMDS, including the professionals who care for those affected.
By following our journey, you become part of a growing community, helping move us closer to the understanding, support, and progress families like ours need.
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No noise, just what matters.