Help move understanding and care forward for MSMDS and ACTA2 related conditions by joining the official MSMDS Patient Registry, securely hosted by Sanford CoRDS (Coordination of Rare Diseases at Sanford) along with our ACTA2 Alliance Partners in the US.

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By sharing your experience, you become part of something bigger, helping to shape research, open doors to clinical trials, and improve care for others around the world.

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Follow the link to Patient Registy which will take you to our US Partner site, where all Patients can Register Internationally.